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By Moore R. L.

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Konrad, M. (2005) Narrating the New Predictive Genetics: Ethics, Ethnography and Science, Cambridge: Cambridge University Press. Landzelius, K. and Dumit, J. (2006) ‘Introduction’, Special theme issue: patient organization movements, Social Science and Medicine, February: 529–82. Lantz, P. and Booth, K. (1998) ‘The social construction of the breast cancer epidemic’, Social Science and Medicine, 46(7): 907–18. H. (2003) The Breast Cancer Wars: Hope, Fear and the Pursuit of a Cure in Twentieth-Century America, New York: Oxford University Press.

I didn’t do anything more for a while and then we moved house and I found some letters from Louise. One was a lovely thank you after the ball and saying that it may be too late for her but for her daughters’ sake please keep fighting because research is the only way forward. Such narratives, which were not untypical in my discussions with the charity’s supporters, provide some evidence for the kinds of involvement being constituted by the act of fundraising. Studies carried out by the organisation itself in the late 1990s also revealed that,like Anne, although some had a ‘personal connection’ with someone who had developed the disease, more than two thirds of fundraisers had, at this time, not had breast cancer themselves.

The kind of exchanges that took place in this setting show how during these events the contingency of the present came rushing up to meet the scientists, who in their responses appeared singularly unprepared to meet these demanding and currently unanswerable issues about the use and utility of genetic knowledge. But in thinking too about the broad terrain of biosocialities that characterise social relations in a breast cancer research charity this exchange illustrates how reference to the BRCA genes, while a resource in the hype filled years of the late 1990s, in the context of later post-genomic complexity could also be a less enabling representational source.

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Concerning Paths That Do Not Separate a Given Continuous Curve by Moore R. L.


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